Defining a ‘Cure’

Isabella and Brynlee, T1D BFFs

Isabella and Brynlee – T1D BFFs

 

According to Webster’s, there are three definitions of the word “cure”:

1) Something (such as a drug or medical treatment) that stops a disease and makes someone healthy again

2) Something that ends a problem or improves a bad situation

3) The act of making someone healthy again after an illness

The definition that isn’t provided by Webster’s is the one you tell your four-year-old who is battling said disease/bad situation/illness.

But today I tried to define it.

Isabella has been overwhelmed with all of the hoopla over the past two months as we held fundraisers, ordered t-shirts with her likeness, and held special events in her honor. And it was great. No…it was amazing. To the tune of almost $15k in funds raised amazing.

For a cure.

A cure she didn’t know could exist.

Until today.

While brushing her hair this morning Isabella asked me the question I had been subconsciously dreading for the past two years: “What’s does ‘cure’ mean, mom?”

Bravery x 2

Bravery x 2 – Isabella and Addison

Isabella can read a facial expression like no other toddler I’ve met. I was grateful that she’d asked for double side ponies this morning instead of her usual side-swept style. I was behind her and she couldn’t see my face. She couldn’t see the wrinkle appear between my eyebrows, as is common when I’m caught off guard with a question I don’t know how to answer.

But she could tell by the delay in my response.

“Is a ‘cure’ for me, mom?”

I put the brush down and I moved in front of her so she could see me…so she could know that what I was going to say was the truth.

“Yes, it’s for you. A ‘cure’ would mean you wouldn’t have diabetes anymore.”

After a second or two she looked at me with the face of someone who’s just come to an amazing realization about something.

“And Addison and Brynlee? And Maeve and Lucas? Oh, and Miss Knox? And…”

As I listened to Isabella continue to name off, one-by-one, all of these young people living with type 1 whom she’s met since she began this journey just over two years ago, I realized that Webster’s got it wrong with their second definition of ‘cure’:

2) Something that ends a problem or improves a bad situation

 

Yes, a cure would end our journey with type 1 diabetes. And, yes, that is what we hope and pray for every day.

Isabella and Miss Knox!

Isabella and Miss Knox!

Where Webster’s gets it wrong is this: our lives have been made BETTER because of type 1 diabetes. Yes, BETTER. All of those people Isabella rattled off? They have made our lives BETTER. All of the challenges we’ve had making sure Isabella is safe at home and school each day has made us BETTER parents.

Does this mean we don’t need a cure for this disease? Of course not. What it does mean is that I wouldn’t change the path we have been on because, as a result, we have had the chance to make a difference. To educate people about this disease and the signs and symptoms to look out for as the numbers of kids diagnosed grows each year. To spread awareness about differences and help people understand that kids with challenges are regular kids.

As I slid the last Hello Kitty rubber band into Isabella’s hair I turned to look her in the eyes.

“Yes, Isa…the ‘cure’ will be for all of you. And the ‘cure’ will be BECAUSE of all of you.”

And it will.

Cheers to Changing the World~

Kristina

 

Silver Linings…

Betsy 2013 1509Just over a year ago Greg and I sat in our kitchen in Mexico City, laptop perched on the kitchen counter, deciding what we should set as our fundraising goal for our Team Inspired by Isabella’s first JDRF Walk to Cure Diabetes.  We had just returned home from the hospital after Isabella’s diagnosis and were ready to hit the ground running with doing something, anything, to help our daughter and raise awareness and funds for a cure.

Greg began completing our team registration and set our goal at $1,500.  I cringed and told him I thought maybe $1,000 or even $800 was a more realistic target.  We were, after all, just 3 weeks out from the walk date and we couldn’t expect people to just donate to a cause about which they knew nothing.

But I was wrong.

In just three weeks we raised nearly $6,500.

Sitting at our kitchen table this spring deja vu set in as I once again second-guessed what we had decided we would set as our fundraising goal for this year: $7,000.  We had time on our side this year and worked hard to share Isabella’s story with everyone we knew.  Our move back to the U.S. also afforded us the opportunity to reach out to our Ohio friends to organize a large team of walkers.

Three weeks ago we had raised just 53% of our fundraising goal and our hope of having walkers en masse looked bleak.  We had heard from others who had been doing these walks for many years say that “every team runs its course”.  We half-wondered if this had already happened to ours…Isabella’s diagnosis was no longer fresh in people’s minds and the novelty of supporting our cause had probably worn off.

But we were wrong.

Fast forward to today at 9am as we began our 2nd Walk to Cure Diabetes:

  • We didn’t raise $7,000…we raised nearly $9,000.
  • Of the 376 registered teams we were the 12th HIGHEST fundraiser.
  • We didn’t have a large team of walkers…we had the 3rd LARGEST team at the walk.  Fifty-five AWESOME people, to be exact.
  • We didn’t receive donations from some of the same people as last year…we received donations from nearly ALL of them and many others.  In fact, a total of 97 donations were received to support our team.
  • We entered the inaugural JDRF Walk to Cure Diabetes #iwalkfor video contest…and we won!  Anyone attending the Cleveland CAVS game December 7th will get to see our video played on the Jumbotron AND see our family center-court during the game!  (Click here to check out our winning video!)

So, if anyone asks us if the novelty of our cause has worn off, our answer would be this: type 1 diabetes is the definition of novel and no two days, let alone two hours, are the same.  So no, the novelty of our cause has not worn off and won’t until a cure is found. And as for our team “running its course”…not even close.

Cheers to Changing the World~
Kristina

And Just Like That, Year Two Begins…

Not Cool Pancreas

She loved the t-shirt we made for her: Not Cool, Pancreas…Not Cool. 🙂

A year ago today we sat in Isabella’s room at the Hospital ABC in Mexico City on DAY 2 of her life with T1D.  Today we began YEAR 2.

Yesterday was amazing…Isabella’s journey was celebrated not only here in Ohio, but also in Texas and Florida. Though we have so much to be thankful for, I have to admit I am looking forward to the day we can celebrate a cure for this disease.

Over the past 24 hours we’ve received some very generous donations from friends, family, and strangers to support our team in the upcoming JDRF Northeast Ohio Walk to Cure Diabetes.  Words can’t begin to express our gratitude to everyone who has joined us on our journey to a cure for type 1 diabetes…we are truly blessed.  A year ago we would never have imagined all that we would experience and accomplish since Isabella’s diagnosis:

-We’ve met some amazing people who also have T1D in their lives;

-Become deeply involved with JDRF (including Greg’s board appointment to the Northeast Ohio chapter);

-Visited the DRI (Diabetes Research Institute) where we met with diabetes researchers;

-Reached nearly 600 Facebook followers and the same number of Twitter followers;

-Led teams participating in JDRF walks in Ohio and the FIND walk in Mexico City;

-Attended the JDRF Hope Gala in Miami;

-Created partnerships to raise funds (including jewelry, t-shirts, hair bows, and ornaments);

-Partnered with amazing businesses to host successful fundraising events;

-Won 2nd prize in a diabetes awareness photo contest sponsored by the JDCA;

-Attended a Children with Diabetes Conference at Disney;

-Been profiled in various online and print publications;

-Launched this website (yay!);

-Raised nearly $14,000 and counting towards diabetes research…

And we’re not done yet 🙂

As promised, here are some photos commemorating Isabella’s 1-Year Diaversary yesterday!

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Waiting to greet her party guests!

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Family and Friends Celebrating Isabella’s Diaversary in Ohio

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Blue (sugar-free!) cupcakes!

 

 

 

 

 

 

 

 

 

 

 

 

balloons1

Isabella’s aunt and cousins organized a balloon launch in Florida to celebrate with us!

Oma Opa Blue Day

Isabella’s Oma, Opa, and cousin supporting her Diaversary in blue all the way from Texas!

maeve balloon launchballoon launch2 balloon launch1 balloon launch