Archives for June 2013

LEARNING TO SURF

surf

Received a message today from another mom of 3-year-old triplets, one of whom was diagnosed with T1D just 2 weeks ago. It pains me every time I hear of another young child being diagnosed, but I am happy we can serve as a source of encouragement to other families.

Though we are still two months away from Isabella’s 1-year “Diaversary” I am amazed how quickly we are becoming experts about life with this disease. I shared some advice with this newly-diagnosed T1D triplet mom but forgot to tell her that she, too, will learn how to surf

ADIOS, AMIGOS

daniela hopeToday we said goodbye to two wonderful people as we get ready to leave Mexico City and return to the U.S. First, Daniela Pacheco Fotografia who took the beautiful photo of Isabella, that many will recognize as our cover photo, just two weeks before being diagnosed with ‪#‎T1D‬ last August. Daniela and Isa connected instantly that day and, based on the smile on her face, you would never have known that she was already fighting for her life. Daniela asked me if she could take one last set of photos before our departure next week so we spent the afternoon at her new studio here in Mexico. We took a few photos that we hope to use to help raise awareness of T1D and this one is a sneak peek.

Tonight we had our final appointment with Isabella’s endocrinologist, Dr. Carlos Antillon. To say that he is one reason Isa is alive is an understatement. Dr. Antillon has been an amazing mentor to us and Isabella adores him:)

I don’t know if it’s appropriate to high-five your spouse and hug your doctor during an appointment but I will tell you that is exactly what I did when Dr. Antillon told us Isa’s ‪#‎A1C‬ test was 7%! I am usually a humble person but I have to admit, I felt a little bit (ok, a whole lot!) of pride when I heard this number.

SHAME ON YOU, CLIFF HUXTABLE

I will admit that when Isabella was diagnosed last August that I had NO IDEA what would “cause” type 1 diabetes. Since then I feel like I’ve become a walking Encyclopedia on all-things T1D.

The first thing I learned was that type 1 diabetes is not caused by consuming too much sugar (though many people have asked me if my then not-even-two-year-old daughter was eating a lot of candy). I was saddened today to read a column written in the New York Post by one of my favorite stars from my childhood, Bill Cosby, about Juvenile Diabetes (now called Type 1) being caused by parental apathy and allowing our children to consume too much sugar.

I can assure you, Mr. Cosby, that my daughter’s diabetes was not caused by drinking too many soft drinks, as you indicate in your post. In fact, I can assure you that my daughter has had to consume MORE sugar since her diagnosis so that she doesn’t lose consciousness from hypoglycemia.

Until a cure is found for T1D I know we will continue to face this battle of ignorance about this disease. While we don’t know the exact causes of type 1 diabetes, the best we can do is help families know the symptoms and to know that no, Mr. Cosby, we did not give our daughter too many Big Gulps from 7-Eleven.

LINK TO ARTICLE:
http://www.nypost.com/p/news/opinion/opedcolumnists/bill_cosby_plague_called_apathy_tbvGiDoQUJe3g9eav1R5wK

Be thankful…

bad things

Since Isabella’s diagnosis we’ve had to check her blood sugar every night at 11pm and 3am. Tonight I told Greg as we were checking her that there’s one good thing about Isa having type 1 diabetes: every night I get to see our trio sound asleep at hours most parents never witness. I re-position their little bodies so they don’t fall off the bed. I cover them up & put their blankets in their hands. I kiss their teeny foreheads & whisper that I love them. These moments remind me why I wanted to have children & why I am the luckiest mom ever 🙂

WHAT’S IN A #?

 

lows

For many of you this number won’t mean anything. For parents of a toddler with type 1 diabetes, this is a scary and dangerously low number that we hope to never see again. Had we returned from dinner just a few minutes later we could have very easily returned to an unconscious little girl. And this time there is no clear explanation for such a low level (which is often the case!).

We are constantly reminded of the daily struggle Isa will face as she battles type 1 diabetes every single day of her life. And as a result we are constantly reminded of why we fight to raise money and find a cure!